"To the members of the Rotary Club of Brighton North, congratulations on taking up a most important challenge in the fight against Friedreich Ataxia.

There is a lack of awareness of this 'genetic neurological degenerative condition' and yet throughout the community many are affected.

Our family experienced losing a grandson and after some years attempting to understand all the ramifications, his life slowly deteriorated and we finally lost him at the age of 15 years."

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